We started off as a husband and wife team, fundraising to help find a way to tame a rare genetic disease we discovered our eldest son has, in 2013. Pseudoxanthoma elasticum, (PXE for short), affects the skin, eyes, cardiovascula and gastrointestinal parts of the body.

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When our son was diagnosed, it was a complete shock! We'd never heard of PXE and were horrified to what it could have in store for him. We found an organisation in the US called PXE International who were, (and still very much are), so supportive and provided us with lots of information and insight into the disease. PXE International was founded by Sharon Terry and her husband, Patrick. They have two children with PXE and so much knowledge and have done so much for the PXE community.

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"PXE International was founded in 1995 to promote research and support individuals affected by pseudoxanthoma elasticum (PXE).  We work on behalf of individuals and their families to improve quality of life through advancing research, educating clinicians and supporting individuals".

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So, it seemed only right to partner up and start raising funds for the amazing work they are doing. We started a massive fundraising campaign to help find a way to limit these symptoms for all of those affected by PXE. 

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Now, three years on into our fundraising and awareness campaigns, our "team" has got bigger and definitely, better. We have roped in family, friends and work colleagues to help us out with our fundraising challenges. We take on individual and team challenges, some of which can be quite wild! Proudly sporting our PXE t-shirts and occasionally our #teampxe headbands, we try and raise as much as we can.

Thanks a million Al & Jo.